ABOUT

Prosthetic & Orthotic Care for Every BODY

So Every BODY Can Move is dedicated to creating an equitable world where every person – no matter their disability – has access to mobility and independence.

Sparking a Nationwide Movement

Our ultimate goal:

28×28

 

We’re empowering access to life-changing prosthetic and orthotic care for physical activity by mobilizing grassroots advocates and championing state-by-state legislative change. And you can join us.

Become part of our 28×28 mission and help us reach our goal to enact So Every BODY Can Move legislation in 28 states by the 2028 Los Angeles Paralympics. You’ll help us spark a national movement for change and create the opportunity to pursue federal, nationwide reform.

Disrupting Healthcare Inequities

Our relentless advocacy work, coalition-building, and state-by-state legislative change is disrupting discriminatory healthcare treatment for the disability community and creating insurance coverage for recreational prosthetic and orthotic care one state at a time. 

Become a Champion for Disability Rights

Challenge the status quo. Join us as we advocate for systemic change. If you have any questions or want to learn more about So Every BODY Can Move, reach out to our team for more information.

Frequently Asked Questions

So Every BODY Can Move believes movement is medicine and physical activity is a right, not a privilege. However, in the United States today, state, federal, and private health plans routinely deny access to prostheses and orthoses necessary for physical activity, sport, and exercise as “not medically necessary.” So Every BODY Can Move is disrupting this healthcare inequity by mobilizing grassroots advocates to champion local, state-by-state legislative change. Our ultimate goal is to create coverage for this medically necessary prosthetic and orthotic care in 28 states by the 2028 Los Angeles Paralympics, so we can then pursue federal reform.

Inspired by the advocacy work of Forrest Stump, a nonprofit organization dedicated to equitable access to physical activity for individuals with disabilities, four national nonprofit partners joined in collaboration in the pursuit of this national initiative including the American Orthotic & Prosthetic Association (AOPA), the National Association for the Advancement of Orthotics and Prosthetics (NAAOP), The Amputee Coalition (AC) and the American Academy of Orthotists and Prosthetists (AAOP). Since launching in 2022, five states have enacted laws to provide individuals with state-regulated commercial insurance with coverage of prostheses and custom orthoses to participate in fitness, physical activities, and sport. Over two dozen states are expected to introduce and consider such coverage in their upcoming state legislative terms.

A prosthesis is an artificial limb that replaces all or part of a missing arm or leg. An orthosis is an orthopedic brace that supports or restricts motion in an arm, leg, the back, or neck. Both prostheses and orthoses improve biomechanical function and require diligent clinical care from licensed/certified prosthetists and orthotists educated in the design, fabrication, and fitting of devices to ensure optimal patient outcomes.

No one orthotic or prosthetic device can replace the vast array of fundamental human movements lost from amputation, disease, or disorder. That is why specialized orthoses and prostheses designed for use in high-activity environments – such as running, hopping, skipping, jumping, swimming, dancing, bicycling, and more – are needed to prevent damage and minimize injury to both body and device. Without them, equal access to physical activity cannot be achieved.

Let’s look at running. It has different biomechanics than walking. For example, in running, more push-off energy is generated by the ankle than during walking, and upon heel strike, the vertical impact of running can equate to around four times one’s body weight.1 Given this, a specific prosthesis has been designed for running to maximize shock absorption and energy return, while improving comfort and minimizing injury.2

Sources:

1 – The anatomy of running – Vox

2 – Ossur-Science-of-Sprinting-Femita-Ayanbeku-2020.pdf (cloudinary.com)

O&P care is essential for individuals living with limb loss, limb difference, and/or mobility impairments. Limb loss can either be acquired (due to trauma, amputation, or disease) or congenital (a condition acquired at birth or during prenatal development); limb difference is solely due to congenital condition. Mobility impairment stems from conditions that affect gross and/or fine motor skills, including arthritis, stroke, muscular dystrophy, cerebral palsy, spinal cord injury, and many other musculoskeletal or neurological conditions. Currently, there are approximately 5 million people living with limb loss and/or limb difference in America.

Yes. One of the categories of benefits covered in the ACA’s “essential health benefits” or “EHB” package is rehabilitation and habilitation services and devices. Legislative history on the EHB package makes clear that orthotic and prosthetic care was intended to be included under this EHB category.  In addition, two entities tasked with defining the EHB package after passage of the ACA, the National Association of Insurance Commissioners and the National Academies, clearly established that O&P benefits are routinely covered in private insurance plans and publicly supported programs and are considered EHB benefits.

They should be. In fact, the So Every BODY Can Move Initiative is designed to highlight and clarify that prostheses and custom orthoses for physical activity are, in fact, already included in the EHB benefit covering medically necessary O&P care. Unfortunately, many commercial payers have taken a more restrictive view that only one prosthesis or orthosis is covered to ambulate, or walk. However, one custom orthosis or prosthesis cannot replace the vast array of fundamental human movements lost because of mobility impairment needed to perform Activities of Daily Living (ADLs), including exercise and physical activities to maintain and improve health. More than one prosthesis or custom orthosis is often necessary to restore human function to the maximum extent possible.

In the United States, the Department of Veterans Affairs (VA) and Department of Defense (DoD) provide active-duty military and retired veterans with limb loss, limb difference, and mobility impairment access to prostheses and orthoses designed for specific physical activities. Additionally, five U.S. states now mandate that state commercial insurance plans cover O&P care for physical activity including: Arkansas, Colorado, Illinois, Maine, and New Mexico. Beyond the United States, other industrialized nations provide more holistic access to O&P care. For instance, Australia, England, France, and Norway provide access to activity and sports prostheses.

Orthotic and prosthetic services are often directly comparable to surgeries and procedures that enable mobility or physical activity. For example, ACL surgery, while considered an elective procedure, is typically covered because the treatment is necessary to restore the body to its full potential. Between 100,000 and 300,000 ACL-related procedures occur in the U.S. each year.1 Yet, comparable care for patients in need of orthoses or prostheses that also enable the body to perform physically is not covered. Health plans should not be able to deny a prosthesis or custom orthosis for an individual with limb loss or limb difference that would otherwise be covered for a person without a disability seeking medical or surgical intervention to restore or maintain the ability to perform the same function.

Source:

1 – Macaulay, Alec A et al. “Anterior cruciate ligament graft choices.” Sports Health vol. 4,1 (2012): 63-8. doi:10.1177/1941738111409890

Our Founders

Empowering Our National Mobility Movement

Together, we’re championing disability rights and ensuring the power of movement is accessible to all.

OUR TEAM

So Every BODY Can Move Visionaries

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Nicole Ver Kuilen

Manager of Public Engagement, American Orthotic & Prosthetic Association

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Sam Miller, MPA

State and Federal Advocacy Manager, American Orthotic & Prosthetic Association

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Joy Burwell

Director of Communications and Membership, American Orthotic & Prosthetic Association

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Eve Lee, MBA, CAE

Executive Director, American Orthotic & Prosthetic Association

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Joe McTernan

Director of Health Policy and Advocacy, American Orthotic & Prosthetic Association

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Manisha Bhaskar

Chief Communications & Strategy Officer, American Academy of Orthotists & Prosthetists

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Charity Quick, MBA, CAE

Executive Director, American Academy of Orthotists & Prosthetists

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Whitney Doyle, CNM, CNP, CP

Government Relations Director, Amputee Coalition

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Ryan Geddie

Government Relations Specialist, Amputee Coalition

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Natalie Harold, CPO

Education & Resource Manager, Amputee Coalition

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Ashlie White

Chief Strategy & Programs Officer, Amputee Coalition

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Peter Thomas, JD

General Counsel, National Association for the Advancement of Orthotics & Prosthetics

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Maggie Baumer, JD 

State Lead Leader of Enterprise Patient Advocacy

Past-President, National Association for the Advancement of Orthotics & Prosthetics

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Nathan Kapa, CP 

Vice President, National Association for the Advancement of Orthotics & Prosthetics

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George Breece

Executive Director, National Association for the Advancement of Orthotics & Prosthetics

Discover Our Impact Reports

Learn more about the progress and impact we’ve made throughout the year. 

2023 Report Coming Soon!

01/01/2023

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Are you curious or eager to bring the transformative initiative of So Every BODY Can Move to your state? Get in touch or seek answers to your inquiries now!