So Connecticut Can Move

We believe movement is medicine and physical activity is a right, not a privilege. But today, thousands of individuals in Connecticut living with limb loss, limb difference, and mobility impairment are unable to afford and access life-changing orthotic and prosthetic care that helps them be physically active due to inadequate insurance coverage, “not medically necessary” denials, and high out-of-pocket costs. So Every BODY Can Move advocates are working to change this.

PURSUING

Connecticut

Status:

Pursuing Legislation

State Leads:

Herb Kolodny, Lindi Mitsou, Brenda Novak

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Meet the
Lead Advocate Team

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Herb Kolodny

State Co-Lead

Co-Founder, Connecticut Amputee Network, Certified Peer Visitor and Certified Peer Visitor Trainer, Amputee Coalition

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Lindi Mitsou, MSPO, CPO

State Co-Lead

Assistant Professor, University of Hartford

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Brenda Novak

State Co-Lead

Co-Founder, Connecticut Amputee Network; Lead Advocate, Amputee Coalition; Certified Peer Visitor and Certified Peer Visitor Trainer, Amputee Coalition

At a Glance

Connecticut Statistics

Physical activity is one of the most important factors in maintaining overall health throughout one’s lifetime. Whether it’s vigorous exercise or simple day-to-day movement, being physically active increases strength and balance, improves mental health, supports better-quality sleep, and reduces the risk of disease and cancer for every body, including people with disabilities.

4.5X

Children with disabilities are 4.5 times less likely to engage in physical activity compared to their peers.

American College of Sports Medicine, Why We Must Prioritize Equitable Access to Physical Activity for Children with Disabilities

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1 in 2

50% of adults with disabilities get absolutely no aerobic physical activity.

Centers for Disease Control and Prevention (CDC), Inactivity Related to Chronic Disease in Adults with Disabilities

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2X

Adults and children with mobility limitations are at greatest risk for obesity and the prevalence of obesity in children with disabilities is almost twice that of children without disabilities.

Centers for Disease Control and Prevention (CDC), Disability and Obesity

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60 / 150 Mins

The U.S. Department of Health and Human Services’ Physical Activity Guidelines for Americans recommends children with disabilities get 60 or more minutes each day of moderate or vigorous intensity aerobic physical activity; for adults with disabilities, the recommendation is 150 minutes weekly.

U.S. Department of Health and Human Services, Physical Activity Guidelines for Americans, 2nd Edition

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$44 Billion

Annual health care costs of obesity that are related to disability are estimated at approximately $44 billion.

Centers for Disease Control and Prevention (CDC), Disability and Obesity

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"F"

According to the 2022 U.S. Report Card on Physical Activity for Children and Youth, the U.S. received an “F” grade for children with disabilities, with less than 17.5% meeting the recommended daily physical activity.

Physical Activity Alliance, The 2022 United States Report Card on Physical Activity for Children and Youth

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Thousands of individuals in Connecticut with limb loss, limb difference, and mobility impairment face difficulties in obtaining affordable and accessible prosthetic and orthotic care for physical activities and exercise because state, federal, and private health plans deem this care “not medically necessary.”

Without health plan coverage, adults, children, and families are forced to:

  • Incur prohibitive out-of-pocket costs (ranging from $5,000 -$50,000)
  • Risk harm/injury using an improper device
  • Live sedentary lifestyles with costly health complications including obesity

Individuals with disabilities need activity-specific prostheses and orthoses in order to participate in physical activity and recreation. Without access, physical activity is out of reach or dangerous when utilizing the wrong device. Additionally, putting more strain on a general-use prosthesis or orthosis may cause damage to the device, resulting in more expense for insurance providers.

 

Background Element 1 Background Element 2

What will this bill do?

This bill would amend Connecticut’s previous prosthetic coverage law (enacted in 2018) so state-regulated commercial insurance plans are required to cover an additional prosthetic device necessary for physical activity.

How this bill benefits Connecticut

A Multi-State Analysis of the Fiscal and Social Impact of Commercial Insurance Coverage for Recreational Prostheses in the United States showed the increased per member per month (PMPM) for Connecticut to cover prosthetic devices for athletics and recreation would be minimal, between $0.01-$0.11, pennies on the dollar, while the long-term savings and social impact of having access to physical activity for individuals in Connecticut with limb loss or limb difference is immeasurable. This bill will improve health equity for people with disabilities who call Connecticut home.

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Inspiring Narratives from Connecticut

Rachel was diagnosed with Ewings Sarcoma (a rare bone cancer) in February 2022. She endured 10 months of intense chemotherapy, 30 rounds of proton radiation and an above-the-knee amputation. She has been disease free for one year. Since becoming an amputee, she has been looking for opportunities to stay active and meet other amputees. She enjoys physical therapy at Connecticut Children’s Medical Center, wheelchair basketball with the Ryan Martin Foundation, skiing with Summitt Adaptive Sports at Sundown and Camp No Limits. Rachel is a patient at Hanger Clinic in Wethersfield, Connecticut and loves her prosthetist Steve Charry who is flexible, knowledgeable, caring, and kind. Rachel hopes to one day have a special prosthetic device that will enable her to run again and play with her friends in gym class and recess.

Rachel Webster

Wethersfield, CT

Rachel was diagnosed with Ewings Sarcoma (a rare bone cancer) in February 2022. She endured 10 months of intense chemotherapy, 30 rounds of proton radiation and an above-the-knee amputation. She has been disease free for one year. Since becoming an amputee, she has been looking for opportunities to stay active and meet other amputees. She enjoys physical therapy at Connecticut Children’s Medical Center, wheelchair basketball with the Ryan Martin Foundation, skiing with Summitt Adaptive Sports at Sundown and Camp No Limits. Rachel is a patient at Hanger Clinic in Wethersfield, Connecticut and loves her prosthetist Steve Charry who is flexible, knowledgeable, caring, and kind. Rachel hopes to one day have a special prosthetic device that will enable her to run again and play with her friends in gym class and recess.

Rachel Webster

Wethersfield, CT

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Inspiring Narratives from Connecticut

Katie was diagnosed with Ewing’s Sarcoma (a rare bone cancer) in 2013 and underwent a right transtibial amputation to remove the tumor. While her first prosthesis was adequate for day-to-day activities, it was clear after a few months of playing basketball and softball this prosthesis was not appropriate for high-level impact. Despite the problems with the prosthesis, she was denied access to a higher-level foot. Katie did not stop playing sports, and as a result severely injured the bottom of her residual limb. Unfortunately, this injury progressed to the point that revision surgery was required. Only after this injury did Katie get a higher functioning foot for her prosthesis. Katie could then continue playing softball and basketball and learned to play new sports, such as volleyball. She is now pursuing her master’s degree in orthotics and prosthetics at the University of Hartford MSPO Class of 2024.

Katie Joiner

Grosvenordale, CT

Katie was diagnosed with Ewing’s Sarcoma (a rare bone cancer) in 2013 and underwent a right transtibial amputation to remove the tumor. While her first prosthesis was adequate for day-to-day activities, it was clear after a few months of playing basketball and softball this prosthesis was not appropriate for high-level impact. Despite the problems with the prosthesis, she was denied access to a higher-level foot. Katie did not stop playing sports, and as a result severely injured the bottom of her residual limb. Unfortunately, this injury progressed to the point that revision surgery was required. Only after this injury did Katie get a higher functioning foot for her prosthesis. Katie could then continue playing softball and basketball and learned to play new sports, such as volleyball. She is now pursuing her master’s degree in orthotics and prosthetics at the University of Hartford MSPO Class of 2024.

Katie Joiner

Grosvenordale, CT

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Inspiring Narratives from Connecticut

Tara is an active bilateral, below-knee amputee. She’s also a mom to teenage young men and a pediatric occupational therapist. Since becoming an amputee, Tara has participated in many 5k’s, the first of which was only 11 months after her first amputation. Tara completed her first triathlon in September 2023 and is excited to receive a recumbent bike from the Challenge Athletes Foundation. She will also be the lucky recipient of a pair of running blades in the very near future thanks to a generous grant program through Ossur. Without these organizations, Tara would not have discovered her new title as an adaptive athlete.

Tara McNeil

West Hartford, CT

Tara is an active bilateral, below-knee amputee. She’s also a mom to teenage young men and a pediatric occupational therapist. Since becoming an amputee, Tara has participated in many 5k’s, the first of which was only 11 months after her first amputation. Tara completed her first triathlon in September 2023 and is excited to receive a recumbent bike from the Challenge Athletes Foundation. She will also be the lucky recipient of a pair of running blades in the very near future thanks to a generous grant program through Ossur. Without these organizations, Tara would not have discovered her new title as an adaptive athlete.

Tara McNeil

West Hartford, CT

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Inspiring Narratives from Connecticut

Chris is an active 62-year-old below-knee amputee. For the past eight years he has not only thrived as an amputee by returning to full-time work, but also remained relevant, influential, and physically active in both his community and personal life. Like many amputees, he engages in physical activities beyond work, including running, hiking, long-distance bicycling, and rowing. Specifically for Chris, rowing necessitates the use of an activity-specific prosthesis.

Chris Evans

New Haven, CT

Chris is an active 62-year-old below-knee amputee. For the past eight years he has not only thrived as an amputee by returning to full-time work, but also remained relevant, influential, and physically active in both his community and personal life. Like many amputees, he engages in physical activities beyond work, including running, hiking, long-distance bicycling, and rowing. Specifically for Chris, rowing necessitates the use of an activity-specific prosthesis.

Chris Evans

New Haven, CT

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Inspiring Narratives from Connecticut

When Herb learned he was losing his leg to cancer, he was busy running his business, which was helping small business owners with computer and network needs. Not a desk job, Herb had to travel to his clients, crawl under desks, pull cables and physically set up new computer systems. Fitted with a microprocessor leg, he was able to return to work. Herb remained active by maintaining himself with workouts at a local gym and participated in many adaptive sports activities. Bike riding was something Herb always loved. With modified pedals, he was able to safely ride again while using his unmodified walking leg. Although some amputees require more than one prosthesis to restore a full array of activities, Herb was fortunate enough to remain physically active with his primary prosthesis. Herb understands prosthetic care is not one-size-fits-all and even though he does not need a specialized prosthesis for physical activity, he is committed to advocating for those who need it. 

Herb Kolodny

Hamden, CT

When Herb learned he was losing his leg to cancer, he was busy running his business, which was helping small business owners with computer and network needs. Not a desk job, Herb had to travel to his clients, crawl under desks, pull cables and physically set up new computer systems. Fitted with a microprocessor leg, he was able to return to work. Herb remained active by maintaining himself with workouts at a local gym and participated in many adaptive sports activities. Bike riding was something Herb always loved. With modified pedals, he was able to safely ride again while using his unmodified walking leg. Although some amputees require more than one prosthesis to restore a full array of activities, Herb was fortunate enough to remain physically active with his primary prosthesis. Herb understands prosthetic care is not one-size-fits-all and even though he does not need a specialized prosthesis for physical activity, he is committed to advocating for those who need it. 

Herb Kolodny

Hamden, CT

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Inspiring Narratives from Connecticut

Before losing her left leg due to trauma in 2008, Brenda was an active outdoorswoman, mountain biker, rock climber, and downhill skier in Colorado and Utah. She was able to return to an active life only by paying 100% out-of-pocket for athletic prostheses created for each specific use: surfing, running, and bicycling. Her personal out of pocket cost for these totaled over $30,000. Brenda has been an advocate for those with limb loss/difference since 2008 and helped lead the effort to enact CT’s insurance fairness law in 2018.

Brenda Novak

Branford, CT

Before losing her left leg due to trauma in 2008, Brenda was an active outdoorswoman, mountain biker, rock climber, and downhill skier in Colorado and Utah. She was able to return to an active life only by paying 100% out-of-pocket for athletic prostheses created for each specific use: surfing, running, and bicycling. Her personal out of pocket cost for these totaled over $30,000. Brenda has been an advocate for those with limb loss/difference since 2008 and helped lead the effort to enact CT’s insurance fairness law in 2018.

Brenda Novak

Branford, CT

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Connecticut Amputee Network (CAN)

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Amputee Coalition

American Academy of Orthotists & Prosthetists (AAOP)

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